Parents of children with special needs will want to read what Montclair’s Alma Schneider wrote: “What I Wish I Had Known When My Son Was Born With a Rare Disorder” for Today:
First and foremost, I wish I had not listened to my Pediatric NICU Doctor who told me to go home and read about Lincoln’s Syndrome on the internet. The internet can be a curse when you have a child with challenges, especially the forums with other parents. Often, not always, people with the most severe cases post on the internet and to read about what could happen to your child when they are 19 years old is, in my opinion, a form of masochism when you need to bond with your infant.
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