The Special Connection: Montclair Mom Shares What She Learned Parenting Son With Prader-Willi Syndrome

Tuesday, Mar 14, 2017 2:00pm  |  COMMENTS (0)

Parents of children with special needs will want to read what Montclair’s Alma Schneider wrote: “What I Wish I Had Known When My Son Was Born With a Rare Disorder” for Today:

First and foremost, I wish I had not listened to my Pediatric NICU Doctor who told me to go home and read about Lincoln’s Syndrome on the internet. The internet can be a curse when you have a child with challenges, especially the forums with other parents. Often, not always, people with the most severe cases post on the internet and to read about what could happen to your child when they are 19 years old is, in my opinion, a form of masochism when you need to bond with your infant.

Read more here.

Leave a Reply

Baristanet Comment Policy:

Baristanet has specific guidelines for commenting. To avoid having your comment deleted -- or your commenting privileges revoked -- read this before you comment. Violators will be banned from commenting.

Report a comment that violates the guidelines to [email protected] For trouble with registration or commenting, write to [email protected]

Commenters on Baristanet.com are responsible for all legal consequences arising from their comments, including libel, infringement of copyright or actions that threaten a third party. By submitting a comment, you agree to indemnify Baristanet LLC, its partners and employees from any legal action arising from your comments.

In order to comment on the new system, you need to register a new Baristanet account. To get your own avatar next to your comments, sign up at Gravatar.com

You must be logged in to post a comment.

Featured Comment

Yes, April is The Foolish Month. This might be the most inept Planning Board we have had in recent memory. They don't even now how to hold a public hearing. It is so Trump-like. Just the times.

Tip, Follow, Friend, Subscribe